Herbie LOVES camping!

Wow he was in his element! Free as a bird, running around the fields, on the beach. To think that I wondered if he would remember how to walk a few months ago! Tomorrow is his 2nd hearing appointment...praying that all is well, no hearing loss, glue ear gone. Be nice to have a few more words and a little less shouting!

Wobbles, Meningitis research & Camping!

We are pretty close to our camping holiday now...we really need a break from the norm as do our friends who we are going with. Should be fun...7 kids (3 seven yr olds, a 5 yr old, 2 two yr olds & a 1 yr old) , 4 adults, 2 tents lots of food & drink & hopefully sunshine!
The loss of the dummy during the day only had one blip...yesterday when poor Herbie fell down a step in the garden straight onto his nose :( many tears, blood and screaming which only 'dumdumdoody' can soothe. Other than that it's been plain sailing. He definitely is a little unsteady on his feet...not sure if this is linked to the meningitis or glue ear!
There was excitement over the news of a possible breakthrough in Meningitis research linking it to a certain gene that makes peoples immune systems more susceptible. With Dan having had two different cancers by the age of 21 and then his son having bacterial meningitis it makes you wonder...it also makes me worry that they could both be at risk again...
See you on the other side of the camping holiday!

Summer holidays, dummy cold turkey & speech

It's been nearly 4 months since we left the JR post Meningitis & Herbie is a normal 18 month old now. He is a real climber and a bit of a dare devil at times which frightens the life out of me. I'd rather not be in A & E with him ever again ;) The main problem we have encountered since the 3 week stay has been his reliance on a dummy for comfort. He used one loads before but during his illness he seemed to have it permanently attached! So 5 days ago I took the decision to remove it during the day. What a trooper he has been! Really no issues at all. Our main worry was his lack of vocabulary. By now his siblings were talking really well but Herbie grunts alot. Even in the last few days we have noticed how much more he 'chatters' and a couple of new words! Ofcourse it is totally feasible that his 'glue ear' is causing the problems not the dummy but we'll soon know!
Fingers crossed he continues to make progress.

10K run for meningitis

The day finally arrived for my sister (left in pic) and two of my sisters in law, Lucy & Wend (R to L). The Meningitis Trust ASICS 10K run in London. All sporting t shirts bearing the name of my precious boy, Herbie, they ran to raise money for The Meningitis Trust. The idea came about the first week that Herbie went into hospital back in March and now they have done it! We are so proud of them! Thanks to you all...WE LOVE YOU xxxx

:(

I hate this...our friend's son has Leukemia, he's 5. We are understandably devasted by this news and worried about the whole family. We have spent evenings just discussing what they are going through, the pain and uncertainty. It's seem selfish that it has stirred up emotions in Dan and I that have only just gone under, but are close to the surface, when we should just be thinking of them. I keep watching Herbie and reliving some of the worst moments...I have to remind myself how bad things were at times. The JR hospital, Children's Wards, are some of the best in the country...they will cure my little train loving buddy just like they did our Herbster...I just want to wave a wand so that it's done now for all of them :(

spots and memories

It's been a while and lots has happened. Herbie has been doing well, running about, being amusing and generally in good health. Then with an outbreak of Chicken Pox (the one thing we were told to avoid) we tried hard to avoid them.
Herbsie had his MMR finally after all of the delays and was a good boy, then 6 days after he had a fever and 14 days later woke with a rash that covered his whole body! A measles rash! Poor spotty boy...
We are also trawling through our memories of our time in hospital with Herbie as good friends of ours are in with their 5 year old who is ill with no diagnosis! Being a parent is so damn hard on the soul at times, thank goodness children are also the best tonic!

More Fundraising

Only 6 weeks until my sister & two of my sister in laws do the 10K run for The Meningitis Trust. My nephew's infant school just raised over £500 for the PHDU at the JR and I have to go and spend the cake sale money on the wish list items asap. I guess as summer arrives the fundraising will end and this period of our lives will be put behind us. We are glad about that, it's time to look forward.
We did have a taste of summer with some glorious weather a few weeks ago and this gave me an opportunity to play with my 4th love (family, job, music being 1,2 & 3), my camera!
As far as Herbalicious and his recovery...well he has glue ear, not caused by the meningitis but probably the initial cold virus. He is still very snotty! Back to the hospital in August to check his ears again. His sleeping pattern is back to normal and he goes to bed without tears now. He walks most places now and is back to be a total monkey.
It is 10am on day 5 of the Spring holiday and he has only been up since 8am but has managed to break a cup, tip his breakfast on the floor and empty the cereal cupboard! The hardest part is the joy you feel seeing him do these 'ordinary' things knowing that a few months ago you wondered if he would make it, let alone cause toddler havoc! I know that I shouldn't be soft on him...he is a normal toddler now, 17 months old and into mischief!