So I have missed a fair few entries...I will try to rectify that this year.
The back end of 2011 really didn't give us a much clearer picture of what we are dealing with. We dutifully attended hospital appointments, got signed off from the chest consultants after the empyema and had lots more blood etc taken.
Results due in Septemeber hadn't arrived and in December, a week before Christmas I recieved a call from our consultant at the JR saying an appointment had been missed. Shocked I said that not as far as I was aware. The consultant then asked if Herb was in hospital!!! Ofcourse he wasn't...he was on the sofa watching Thomas the tank engine but why did she think he might be??? (worry number 1) .
The appointment was apparently very important as results were in & more blood tests required (worry number 2). Could she tell me what the results showed? No she didn't like doing it over the phone (worry 3). I wasn't happy with that so demanded some explanation. It was clear that there was an immune system deficiency which was linked to the ability to fight pneumococcal bacteria (cause of meningitis, pneumonia etc) and he needed immediate antibiotics to help protect him at this tricky time of year. (worry number 4).
Appointment now on Jan 24th, antibiotics 3 times a week...a smiley boy who is no longer my baby (3 years old in a week!) is coughing a little but seems happy & well. His legs and face were very blotchy today but this comes & goes. Just going to have to 'suck it and see' and that sucks in itself
